This was our second heart walk and it was a beautiful day for a walk in Phoenix. We were joined by my best friend and her family along with My sister, nephew, brother and one of Josh's co-workers. I made the T-shirts this year instead of ordering them and I thought they turned out alright for not being any too great. We always have a wonderful time walking with other members of the Heart Community. Its a great time for us to reflect on our lives, health and family. Its a little emotional for me to see how far we have come from the day Morgyn was diagnosed. She is a wonderful little girl and we are so glad to have her and to have had the experiences her heart disease has brought us. Hope we get to walk with All of you next year!
Showing posts with label Morgyn. Show all posts
Showing posts with label Morgyn. Show all posts
Thursday, March 31, 2011
Heart Walk 2011
This was our second heart walk and it was a beautiful day for a walk in Phoenix. We were joined by my best friend and her family along with My sister, nephew, brother and one of Josh's co-workers. I made the T-shirts this year instead of ordering them and I thought they turned out alright for not being any too great. We always have a wonderful time walking with other members of the Heart Community. Its a great time for us to reflect on our lives, health and family. Its a little emotional for me to see how far we have come from the day Morgyn was diagnosed. She is a wonderful little girl and we are so glad to have her and to have had the experiences her heart disease has brought us. Hope we get to walk with All of you next year!
Labels:
crafts,
Feburary,
Heart,
Heart Walk,
Morgyn,
Winter 2011
Wednesday, February 16, 2011
Morgyn Turns 2
Our Sweet Morgyn Turned 2 on the 6th of Feb. It was a Sunday and we just celebrated as a family with a little cake. Which she could not keep her fingers out of. Not that I wanted her to. She thoroughly enjoyed it and the new tea set she got. Morgyn is such a joy in our lives. She is crazy! She is so much like her brother. She makes the same faces as he does and love to play rough with him. I think it must be because they spend so much time together. She also loves her new stroller Auntie Ashely got her. She always has to have a baby with her, she is a little Mommy just like Taylor. She is working toward potty training, talking alot and still in a crib which is new for us. She is loaded with personality and spunk. We just love our little Morgyn!
Happy Happy Birthday to her!




Happy Happy Birthday to her!
Sunday, February 6, 2011
Tearful Thoughts.
I don't think that this day will ever get any easier for me. I feel a little guilty at times that her birth mean so much to me. My other children are such great blessings and I adore them as much as I do her but I have a rough time on this day.
I was sitting here doing homework, working away writing a final essay, editing and posting it when I finally finished I dramatically burst into tears. Not because I stress, proud or finished but I looked at the time, right around 10:30, I remember the late hours of the day of her birth pretty well, even though they were such a blur. I guess I can't say I remember them well and that they were a blur but I do want to document what I do remember.
I remember them sending me out of the room, it was about 7:30 at this point, not giving me any information on what was going on, I remember the rocking chair I sat in, I remember sobbing not know what to do thinking I had failed that I had some how hurt my sweet baby girl. I remember the phones in the nursery ringing and ringing people seemed frantic yet I knew nothing, they just kept telling everyone on the line " we can't do it now, we are bagging a baby" I knew that baby was mine. I remember calling Josh, just barely, and waiting for him to return to the hospital. One thing I will NEVER forget, I have heard it clearly in my head many times in the last 2 years and I know I remember it because my husband believed it and he helped me to believe it was true, He never told me, she will be fine, he will get well he only told me that the lord was with her, he said this You have done your part as a mother, given our child the greatest give a mother can give her child, a body. It is part of the plan, it is what you were supposed to do. We continued to talk about the plan of salvation and that if we did loose our sweet Morgyn that we would be reunited with her again. That the lord was kind and he would comfort us. I knew that was true. His testimony that night was one of the sweetest things he has ever done for me, today at church my husband shared again his testimony, one of charity and service, his love for his family and love of church leaders, he honored me as his wife and shared his love for me and our family, I was so grateful I couldn't speak.
Next I remember the blessing Josh and My brother in law Brian gave Morgyn one of safety and comfort, they left her life and our heart in the lords hands. She was calm. She looked peaceful most importantly at that point she looked a little more pink. They then gave me a priesthood blessing of rest, peace and comfort. Josh then went to the other hospital with Morgyn, I stayed and went back to my room. I don't remember much after that until 4:16 the next morning I woke up to a baby crying and I cried but turned over to realize my sweet husband was back by my side there to comfort me trusting the lord that our children were in good hands. He was there for me.
I feel like I am terrible at expressing it but I love that man, he has stood strongly beside me through hard time and great times. He makes me laugh often, take most wonderful care of me and my children, I couldn't be more grateful or proud of the man he is.
I am truly grateful for my knowledge of the plan of salvation through the last 2 years especially the lord has continued to testify to me that he has a plan for each of us. We have agency but when we are to be called back to our savior we will return. There are many in heaven waiting for the gospel and many missionaries need there.
To those who have lost children, babies and loved ones
know the lord loves you, keep him close to you for comfort he will guide you through the tough times, he will show you the way to comfort. Know that there will be a time again that you will see those who have passed on. Trust in him that he will allow you happiness and that is indeed what he desires for you. I know we have a loving savior and I am grateful for him. In the name of our loving lord and savior Jesus Christ--- Amen
I was sitting here doing homework, working away writing a final essay, editing and posting it when I finally finished I dramatically burst into tears. Not because I stress, proud or finished but I looked at the time, right around 10:30, I remember the late hours of the day of her birth pretty well, even though they were such a blur. I guess I can't say I remember them well and that they were a blur but I do want to document what I do remember.
I remember them sending me out of the room, it was about 7:30 at this point, not giving me any information on what was going on, I remember the rocking chair I sat in, I remember sobbing not know what to do thinking I had failed that I had some how hurt my sweet baby girl. I remember the phones in the nursery ringing and ringing people seemed frantic yet I knew nothing, they just kept telling everyone on the line " we can't do it now, we are bagging a baby" I knew that baby was mine. I remember calling Josh, just barely, and waiting for him to return to the hospital. One thing I will NEVER forget, I have heard it clearly in my head many times in the last 2 years and I know I remember it because my husband believed it and he helped me to believe it was true, He never told me, she will be fine, he will get well he only told me that the lord was with her, he said this You have done your part as a mother, given our child the greatest give a mother can give her child, a body. It is part of the plan, it is what you were supposed to do. We continued to talk about the plan of salvation and that if we did loose our sweet Morgyn that we would be reunited with her again. That the lord was kind and he would comfort us. I knew that was true. His testimony that night was one of the sweetest things he has ever done for me, today at church my husband shared again his testimony, one of charity and service, his love for his family and love of church leaders, he honored me as his wife and shared his love for me and our family, I was so grateful I couldn't speak.
Next I remember the blessing Josh and My brother in law Brian gave Morgyn one of safety and comfort, they left her life and our heart in the lords hands. She was calm. She looked peaceful most importantly at that point she looked a little more pink. They then gave me a priesthood blessing of rest, peace and comfort. Josh then went to the other hospital with Morgyn, I stayed and went back to my room. I don't remember much after that until 4:16 the next morning I woke up to a baby crying and I cried but turned over to realize my sweet husband was back by my side there to comfort me trusting the lord that our children were in good hands. He was there for me.
I feel like I am terrible at expressing it but I love that man, he has stood strongly beside me through hard time and great times. He makes me laugh often, take most wonderful care of me and my children, I couldn't be more grateful or proud of the man he is.
I am truly grateful for my knowledge of the plan of salvation through the last 2 years especially the lord has continued to testify to me that he has a plan for each of us. We have agency but when we are to be called back to our savior we will return. There are many in heaven waiting for the gospel and many missionaries need there.
To those who have lost children, babies and loved ones
know the lord loves you, keep him close to you for comfort he will guide you through the tough times, he will show you the way to comfort. Know that there will be a time again that you will see those who have passed on. Trust in him that he will allow you happiness and that is indeed what he desires for you. I know we have a loving savior and I am grateful for him. In the name of our loving lord and savior Jesus Christ--- Amen
Tuesday, September 14, 2010
Miss Ella
Monday, May 17, 2010
Cardiologist Update
Cardiologist update today! I STRESS OUT! When these come around every 6 months! I get this terrible knot in my stomach and feel insane all day until they are over. This appointment was extra scary to me because if Morgyn didn't behave we would have to sedate her for an echo... I was not looking forward to the fight and I was almost positive that she was going to freak out and squirm and we were going to have to come back. She is 15 months could I really expect her to be good the entire time? No, and she wasn't but.... to my joy and surprise we got all the pictures of her little wonderful working heart that we needed.
She did SCREAM like we were torturing her for the first 20 minutes or so but after I found a lip gloss in my purse she munched on that ( gross I know but its better then sedation) for a while she settled down and watched Elmo the rest of the time. I felt like my prayers had been answered and that the lord was certainly watching over me...
(I'm about ready to blab so skip to the pictures if you would like)
I am in complete awe of how blessed we are. I don't think I deserve these blessings often and maybe it is Morgyn's faithfulness and not mine that gets us these extra blessings but every time we go to the cardiologist it seems things are getting better and I couldn't ask for more!
First- I am so so so Grateful that we have Dr. Rhee as a Doctor, I did not pick him, I did not do research to find him... he was handed to us and he is AMAZING! He is so kind , funny and he remembers my child!!!! I think that is huge! He is so sweet with her and always makes me feel like I know what is going on. Never leaves questions unanswered and I have always felt like he has our very best interest in mind. How did we get so lucky????
Second- just to mention that the Doctor that actually did Morgyns procedure just did the first pediatric heart transplant in AZ ( see the article here) Is it amazing or what that he is the one that saved our little lady! I sure am grateful!
Third- Morgyn's heart is nearly perfect now! I realize that she still could relapse but the chances are low (10%ish) and she is growing so wonderfully as you can see! Dr. Rhee said today that " she's a keeper" :) in his word she is wonderful! He said she has very minor narrowing of her valve, she is in normal range.... Normal range for ANY CHILD!! not just a child with heart disease. She almost doesn't even need that nasty heart disease title anymore!!! But we must keep it just to be cautious! I love this girl she is an amazing spirit and is so sweet. I love that we get to keep her and that she is so very healthy now! She is a unique addition to our home and I am ever indebted to our heavenly father for allowing her to stay here on earth with us and help us to grow!
Last- We get to see Dr. Rhee again in 6 months and if all is well it will be a year before we see him again! Love it!!!!
Sorry These of course are backward!
She did SCREAM like we were torturing her for the first 20 minutes or so but after I found a lip gloss in my purse she munched on that ( gross I know but its better then sedation) for a while she settled down and watched Elmo the rest of the time. I felt like my prayers had been answered and that the lord was certainly watching over me...
(I'm about ready to blab so skip to the pictures if you would like)
I am in complete awe of how blessed we are. I don't think I deserve these blessings often and maybe it is Morgyn's faithfulness and not mine that gets us these extra blessings but every time we go to the cardiologist it seems things are getting better and I couldn't ask for more!
First- I am so so so Grateful that we have Dr. Rhee as a Doctor, I did not pick him, I did not do research to find him... he was handed to us and he is AMAZING! He is so kind , funny and he remembers my child!!!! I think that is huge! He is so sweet with her and always makes me feel like I know what is going on. Never leaves questions unanswered and I have always felt like he has our very best interest in mind. How did we get so lucky????
Second- just to mention that the Doctor that actually did Morgyns procedure just did the first pediatric heart transplant in AZ ( see the article here) Is it amazing or what that he is the one that saved our little lady! I sure am grateful!
Third- Morgyn's heart is nearly perfect now! I realize that she still could relapse but the chances are low (10%ish) and she is growing so wonderfully as you can see! Dr. Rhee said today that " she's a keeper" :) in his word she is wonderful! He said she has very minor narrowing of her valve, she is in normal range.... Normal range for ANY CHILD!! not just a child with heart disease. She almost doesn't even need that nasty heart disease title anymore!!! But we must keep it just to be cautious! I love this girl she is an amazing spirit and is so sweet. I love that we get to keep her and that she is so very healthy now! She is a unique addition to our home and I am ever indebted to our heavenly father for allowing her to stay here on earth with us and help us to grow!
Last- We get to see Dr. Rhee again in 6 months and if all is well it will be a year before we see him again! Love it!!!!
Sorry These of course are backward!
So Very Happy To Be finished!!!
Sunday, May 16, 2010
Suns Fan?
The Game was Intense
She is Beautiful
Mmmm Popcorn
Lovin it!
Its no secret that we love the Sacramento Kings but the Suns are hot stuff here in the Valley of the sun and you can't help but watch when they are in the playoffs even Morgy got in on the action. She was in heaven in her little chair, watching the suns game and eating popcorn! GO SUNS!!! and KINGS!
Heart Walk 2010
Instead of playing catch up with the exception of the hear walk Im going to just play keep up and see how that goes!
So the heart walk.... What a wonderful experience Morgyn's first heart walk was. It was SUPER special to have so much family here! We all had matching T-shirts and walked together... We had a TON of support and donations made in Morgyn's honor ( so much in fact that I was asked to be on the heart walk board for 2011, I am very excited) It was just awesome to honor her fight and support the Heart Association. We are so very greatful that we got our little girl back to us healthy by supporting the American Heart Association we can help others learn more about infant heart disease as well as fighting heart disease in adults!!!
Labels:
Family,
Feburary,
Heart,
Heart Walk,
Morgyn,
Special days,
Winter 2010
Thursday, September 24, 2009
MO Buddies!
I am so lucky to have a wonderful husband who LOVES to spend time with our kids and me!!! He is just the best dad and so when Morgyn was hanging with him he was thrilled! She was completely enjoying her Daddy time as well. The other kids were in bed so she got to have daddy and some popcorn all to herself.
Sunday, June 7, 2009
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