This was our second heart walk and it was a beautiful day for a walk in Phoenix. We were joined by my best friend and her family along with My sister, nephew, brother and one of Josh's co-workers. I made the T-shirts this year instead of ordering them and I thought they turned out alright for not being any too great. We always have a wonderful time walking with other members of the Heart Community. Its a great time for us to reflect on our lives, health and family. Its a little emotional for me to see how far we have come from the day Morgyn was diagnosed. She is a wonderful little girl and we are so glad to have her and to have had the experiences her heart disease has brought us. Hope we get to walk with All of you next year!
Showing posts with label Heart. Show all posts
Showing posts with label Heart. Show all posts
Thursday, March 31, 2011
Heart Walk 2011
This was our second heart walk and it was a beautiful day for a walk in Phoenix. We were joined by my best friend and her family along with My sister, nephew, brother and one of Josh's co-workers. I made the T-shirts this year instead of ordering them and I thought they turned out alright for not being any too great. We always have a wonderful time walking with other members of the Heart Community. Its a great time for us to reflect on our lives, health and family. Its a little emotional for me to see how far we have come from the day Morgyn was diagnosed. She is a wonderful little girl and we are so glad to have her and to have had the experiences her heart disease has brought us. Hope we get to walk with All of you next year!
Labels:
crafts,
Feburary,
Heart,
Heart Walk,
Morgyn,
Winter 2011
Monday, May 17, 2010
Cardiologist Update
Cardiologist update today! I STRESS OUT! When these come around every 6 months! I get this terrible knot in my stomach and feel insane all day until they are over. This appointment was extra scary to me because if Morgyn didn't behave we would have to sedate her for an echo... I was not looking forward to the fight and I was almost positive that she was going to freak out and squirm and we were going to have to come back. She is 15 months could I really expect her to be good the entire time? No, and she wasn't but.... to my joy and surprise we got all the pictures of her little wonderful working heart that we needed.
She did SCREAM like we were torturing her for the first 20 minutes or so but after I found a lip gloss in my purse she munched on that ( gross I know but its better then sedation) for a while she settled down and watched Elmo the rest of the time. I felt like my prayers had been answered and that the lord was certainly watching over me...
(I'm about ready to blab so skip to the pictures if you would like)
I am in complete awe of how blessed we are. I don't think I deserve these blessings often and maybe it is Morgyn's faithfulness and not mine that gets us these extra blessings but every time we go to the cardiologist it seems things are getting better and I couldn't ask for more!
First- I am so so so Grateful that we have Dr. Rhee as a Doctor, I did not pick him, I did not do research to find him... he was handed to us and he is AMAZING! He is so kind , funny and he remembers my child!!!! I think that is huge! He is so sweet with her and always makes me feel like I know what is going on. Never leaves questions unanswered and I have always felt like he has our very best interest in mind. How did we get so lucky????
Second- just to mention that the Doctor that actually did Morgyns procedure just did the first pediatric heart transplant in AZ ( see the article here) Is it amazing or what that he is the one that saved our little lady! I sure am grateful!
Third- Morgyn's heart is nearly perfect now! I realize that she still could relapse but the chances are low (10%ish) and she is growing so wonderfully as you can see! Dr. Rhee said today that " she's a keeper" :) in his word she is wonderful! He said she has very minor narrowing of her valve, she is in normal range.... Normal range for ANY CHILD!! not just a child with heart disease. She almost doesn't even need that nasty heart disease title anymore!!! But we must keep it just to be cautious! I love this girl she is an amazing spirit and is so sweet. I love that we get to keep her and that she is so very healthy now! She is a unique addition to our home and I am ever indebted to our heavenly father for allowing her to stay here on earth with us and help us to grow!
Last- We get to see Dr. Rhee again in 6 months and if all is well it will be a year before we see him again! Love it!!!!
Sorry These of course are backward!
She did SCREAM like we were torturing her for the first 20 minutes or so but after I found a lip gloss in my purse she munched on that ( gross I know but its better then sedation) for a while she settled down and watched Elmo the rest of the time. I felt like my prayers had been answered and that the lord was certainly watching over me...
(I'm about ready to blab so skip to the pictures if you would like)
I am in complete awe of how blessed we are. I don't think I deserve these blessings often and maybe it is Morgyn's faithfulness and not mine that gets us these extra blessings but every time we go to the cardiologist it seems things are getting better and I couldn't ask for more!
First- I am so so so Grateful that we have Dr. Rhee as a Doctor, I did not pick him, I did not do research to find him... he was handed to us and he is AMAZING! He is so kind , funny and he remembers my child!!!! I think that is huge! He is so sweet with her and always makes me feel like I know what is going on. Never leaves questions unanswered and I have always felt like he has our very best interest in mind. How did we get so lucky????
Second- just to mention that the Doctor that actually did Morgyns procedure just did the first pediatric heart transplant in AZ ( see the article here) Is it amazing or what that he is the one that saved our little lady! I sure am grateful!
Third- Morgyn's heart is nearly perfect now! I realize that she still could relapse but the chances are low (10%ish) and she is growing so wonderfully as you can see! Dr. Rhee said today that " she's a keeper" :) in his word she is wonderful! He said she has very minor narrowing of her valve, she is in normal range.... Normal range for ANY CHILD!! not just a child with heart disease. She almost doesn't even need that nasty heart disease title anymore!!! But we must keep it just to be cautious! I love this girl she is an amazing spirit and is so sweet. I love that we get to keep her and that she is so very healthy now! She is a unique addition to our home and I am ever indebted to our heavenly father for allowing her to stay here on earth with us and help us to grow!
Last- We get to see Dr. Rhee again in 6 months and if all is well it will be a year before we see him again! Love it!!!!
Sorry These of course are backward!
So Very Happy To Be finished!!!
Sunday, May 16, 2010
Heart Walk 2010
Instead of playing catch up with the exception of the hear walk Im going to just play keep up and see how that goes!
So the heart walk.... What a wonderful experience Morgyn's first heart walk was. It was SUPER special to have so much family here! We all had matching T-shirts and walked together... We had a TON of support and donations made in Morgyn's honor ( so much in fact that I was asked to be on the heart walk board for 2011, I am very excited) It was just awesome to honor her fight and support the Heart Association. We are so very greatful that we got our little girl back to us healthy by supporting the American Heart Association we can help others learn more about infant heart disease as well as fighting heart disease in adults!!!
Labels:
Family,
Feburary,
Heart,
Heart Walk,
Morgyn,
Special days,
Winter 2010
Monday, March 23, 2009
Surgery Cost
I realized I never did post the correct answer!!! It was 93,900 that was just for the 1 dr who did the surgery! It was worth it of course but WOW! I should be an infant heart surgeon!!!
Wednesday, March 18, 2009
Cardiologist Follow up
We visited the Cardiologist for Morgyn's one month appointment today. She is doing AWESOME! She said she is healing perfectly and we are at very low risk for having to ever have to repeat the procedure. He said she has about a 1 in 5 chance of having her valve not grow with her and one day she may have to go through the entire thing again. All in all really really good news! We are so grateful!
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